AT ANY AGE!!!!
I've had it for 6 years and the great 'guru's aren't always the ones you need NEAR you to treat you? I've seen area wide GURUS AND Local 'gurus' and I gotta admit that after seeing over NINE neurologists? #'s 2 &3 were the ones for me. I got diagnosed IN TIME for an auto-immune condition the first 2 neuros wrote-off to other issues...not realizing that those other issues were a RESULT of the primary one? AND, I kid not! The diagnosis of 'mere' PN was 'found on the internet' BYthe ER DOC! That he said no more than 'I found your problem on the 'net' and I know what to do...and not tell me ALL he found? I'm not a happy camper for the long term. Especially as delayed diagnosis created additional and unnecessary medical problems. Some of them permanent.
Miriam, I am saying this not to scare you, but, with your swallowing issue? [I too hate huge pills?] I think you mite be doing good to get another neuro opinion. Second opinions are cheap compared to total LIFE? Golly, be safe w/another opinion, not SORRY!

Keep at the diagnosis! Keep faith that YOUR BODY is saying WRONG! a LOT?
Keep HOPE that you will find THE doc to help YOU as a person. I was lucky, and super persistent in keeping at finding out what-the-fundge was going on with me? While I could! You WILL Find that doc! I have faith in that and in you - 's - j