Thread: Just curious
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Old 11-24-2009, 12:36 AM
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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Quote:
Originally Posted by Catch View Post
I know everyone's MS is different, but mine seems particularly different, so I'm curious about the rest of you.
I think it's safe to say, we're all particularly different with our symptoms, however there are cross-over points. For me it's day to day:

-Trigeminal Neuralgia/Neuropathy of the head/mouth (these are the worst, by far). ---> headaches usually accompanying this mess.
-Numbness in fingers/hands (off and on)
-Extremely blurry vision (sometimes doubled, or garbled)
-Altered sense taste and smell
-Mild fatigue (could be attributed to my medications for pain though)
-Electrical 'twinges', esp. one on the bottom of my left foot (feels like a buzzing or humming)

I'm pretty lucky, but some days I'm on a pain scale with my neck up of 13 out of 10.

In a relapse I have much more vicious symptoms.. vertigo, extreme extremity numbness, loss of sense of body parts (right leg last time), L'Hermittes Sign, girdle-band(ing)... I even had severe facial spasms that looked like reversed Bells Palsy (face pulling upwards instead of drooping) with twitching everywhere on 1 side.

I've had a lot of different come and go symptoms and when I list them, I always read back over them and remember ones I've missed.

I'm almost 100% affected by sensory symptoms, in any event.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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