Thanks for all the sites and ideas. I have yet to have time to go thru it all. Always a crisis with my oldest daughter, always always, always. No time for me. Yet she says we don't love her. Whoops thats for another place. Sorry. I did find out there are 120 neurologists at Johns HOpkins and they are to coordinate me with one who specialized with my sx. There is even a Marc train to get there from where I live in MD. and my dearest hubs said he would go with me. It is a huge huge hospital. Maybe I will really get some help!