Quote:
Originally Posted by MiriamS
Thanks guys. There is so much information out there, and a lot of it may be good information. I just ... how do I put this, have zero strength right now to research any more. I know this probably makes no sense to most people. After all, if there is something in those stickies that could potentially help me, shouldn't I be interested in reading it and jotting things down? At this time (maybe the depression is really getting to me) I have just about given up, even though I know that there is absolutely no way I will get better if I have no hope. I'm making no sense with all the above, I'm sorry, I'm just having so much difficulty concentrating right now.
Thank you all for your replies.
Glenn, how have you been helped by Cornell? Are the meds that you are taking helping you? How long have you had the neuropathy for and what are your symptoms? I have yet to find (and hope I don't) someone who is experiencing this burning pain, and very achy muscles in their entire body. It seems that most people either have burning feet, toes, or some small part of their body (and I don't mean to minimize anyone's excrutiating pain). It's interesting that you mention Dr. Latov having neuropathy himself. Has he told this to you?
Again, thanks everyone  |
Some questions:
Do you have Acid Reflux as well? When do you burn the most? Can you discern any rhyme or reason, bending, stretching the neck, twisting the hips that aggravates or makes it worse? When you wake up in the morning, do you wake up burning? When does it start? When does it stop and can you do something to make it stop? If I stop moving for awhile and either sit or lay down it slows and will eventually stop. If I lean over and or lay down on and put pressure on my stomach, it goes crazy and hurts bad. Looking down for a period of time or craning my neck to one side or the other fast will(feels like tears something in neck) and then symptoms. Is there any pattern you grab from this. I found my pain worse on Neurontin because I was ignoring all my triggers and doing stuff that kept the condition aggravated. Have you tried Alpha Lipoic Acid and Acetyl-L-Carnitine?