Annie: Thanks for all this information.

Yet, i didnt know if it was bad enough to go to the ER, because i could still swallow, it was just harder to do it. And the breathing is always shallow for me, and the doctors know that. They always have my take a deep breathe in and count as much as a i can. Dont do that well. Though I think i might be getting closer to a bad crisis.

I was having muscle spasms in my buttox, and left shoulder.

I dont even remember lying down to go to bed, i just remember waking up at 3 AM being able to swallow somewhat normal again. So possibly i did pass out. i dont even know..

im 17 and live with my aunt and uncle who have 4 kids, so its real hard for them to be compassionate or do anything about this, they are always around their kids, or sleeping because they are tired.

I wish i could buy a pulsox to have at my house, but they are kind of expensive just to go out and buy for this.

im not on mestinon, though i did try it the other day, but i took some more this morning because my neuro had asked me to when feeling weak, and i just feel so tired, and walking up the stairs my heart beat goes fast, and my legs feel like they are going to fall off.


So i guess my main question is, even if it is difficult to swallow, but still able to should i go to the ER, or contact my neuro? My breathing is always not great. But the esphogial muscles sometimes get weak and feels hard to swallow. This morning i almost started to choke on my sandwhich.

I also feel very light headed.


Im not sure what to do.
Thanks so much.