Quote:
Originally Posted by MiriamS
aeb105,
Thank you for writing. Other than stress, I cannot figure out what causes the symptoms to get worse, or slightly better. There is never a time that I am pain free. My body aches all over and I feel burning specifically in upper and lower extremities, although quite often it feels like my entire body is on fire, 24/7, but the burning may become more or less severe at times, although I haven't been able to figure out what makes it burn more/less as much as I tried. I know lying down is sometimes worse than when I am active, doing an activity and keeping busy, but that is not always the case. I was thinking that maybe when I'm busy with other things and try not to focus on the pain so much, it seems better, but when I'm lying in bed, I tend to concentrate on the pain more, although I'm not sure.
I do wake up in the morning in a lot of pain, burning all over, feeling really achy in all my muscles. At times, this improves a little as I beging going about my day, only to once again sting me a few hours later. In short, I'm not sure what is causing the symtoms to getter better or worse, but I'm always in pain.
I was recently diagnosed with erosive gastritis as well, and am currently taking medication for that. But that has gotten much better already and I feel that it is the least of my worries right now.
I have not tried Alpha Lipoic Acid and Acetyl-L-Carnitine. Are these pills? Do they come in liquid? Can they be dissolved?
I have great difficulty swallowing pills  which prevents me from trying various medications. |
I had the same and I think some of the burning was because of that. If you are on Prevacid you need to be taking B-12 and other B vitamins because Proton Pump Inhibitors drain your body of these vitamins. This in turn will make the burning worse. I didn't know about this and was on Prevacid as well for about 1.5 years and found that once I got off, things got better. You can take DGL Licorice and Marshmallow Root to ease and get rid of Gastritis.
Alpha Lipoic Acid and Acetyl-L-Carnitine are pills that you can take, you can get them from Walmart. Actually just buy the Walmart brand of Alpha LipoicAcid/ Acetyl-L-Carnitine and see if you can tolerate it. If you cannot, like me let me know and I will tell what else might be beneficial.
For the ups and downs you need to take fish oil at least once a day. This will balance your swings and raise you a bit. I also take Taurine because it has a balancing effect as well. These things you can get at Walmart. I don't swallow pills well either, but I know that having some releif and making my problems better is the best path. My throat feels scarred and to get around problems with the pills, you can take with yogurt, or some kind of food and then a drinik. You will get good at padding the pills with food and making them go down easier.
Magnesium Oil might help with the burning as well. I order Swanson's Utra Magnesium Oil Spray. In addition, I take Gotu Kola for the a bunch of reasons related to neuropathy. Bacopa is the one I took when I was pretty depressed. You can get them online or at the Vitamin Shoppe. These are just some of the things that I do that help. Let me know if you try and if it doesn't help can make other suggestions. A lot of this is experimenting and finding a regimen that works, is healthy and is tolerable.