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Magnate
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Join Date: Nov 2006
Posts: 2,088
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Magnate
Join Date: Nov 2006
Posts: 2,088
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Hi Chef,
I'm sorry to hear that you are having such a hard time.
I believe with the RSD we all have to get to a certain place with it where we have it under control so we can function to a certain extent.
As far as the pain. I always felt that the pain scale to 10 was a joke. I've told my Drs. at times it seems 100.
I don't remember how long you have had the RSD but it takes time to get to acceptance of it. I think it's just like a loss. We grieve, then get angry, then accept it.
Thanksgiving doesn't seem like Thanksgiving to me and my daughter because Bill died 3 days before Thanksgiving 3 years ago and was buried the day after. We do however have dinner. Her husband did all of the cooking and we just had to eat but we were there with all of the family. We have traditions that we try to keep for the kids in our family. It's hard to do it but it comes down to trying to put others first.
It's took me 22 years to get to where I am today. I say I am in remission but I do have the pelvic pain and it's acting up again. I was also in a car accident last week and got my right side going. It still hasn't calmed down.
Councelling can be brutal. I think they try to get us to realize that we are better off then people with cancer. I see my friend in a wheelchair and almost gone from MS and I know I am better off then she is. I do think however that the Councellors donot have a right to make a person feel that way. I have been in councelling for over 10 years and I love my Councellor who is also my PCP and we have had our rounds at times but then I think about some of the things he says and know he's right. We also have to realize that they may have medical issues also and can relate to us but still try and do their job. My thought would be to find another Councellor if this one is too rude. Councelling has kept me alive. I became more suicidal from all of the pain as some of us seem to do with RSD
As far as getting out. I have trouble with that but I do have friends that make me get out now. I walked through the antique stores here with my friend Wed. and we had to quit after so many but it was nice. We live in the antique capital of Colorado so there are a lot of them. I also have a friend I help in her consignment clothing store. I have started walking again to get my weight back down. I am enjoying that.
I use to go deer and elk hunting with Bill so I can relate to the hunting thing. Spending time in the mountains here is like being in Heaven and I miss it too.
You will get better, it just takes time. It does spread on all of us, none of us seem to get around that. Hopefully what will happen with you is that your meds will start helping you more and the pain will calm down some.
I had blocks, Physical Therapy, meds, triggerpoint injections, the works and it took 10 years to get me to doing better. It's not an easy road for anyone with RSD.
You will most likely never get to where you fully accept that you can't go back to work full time or at all, you can't do all the things you use to do but God willing you will get to a better place soon.
Hang in there.
Ada
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