Quote:
Originally Posted by corinne89
Hi,
I SO understand what you are saying. I have wasted so much time and money on therapists that seemed to diagnose me based upon current "theory" and their interests. I tried whatever psych meds they wanted me to try. They did not work, and generally made me worse. Then, I got diagnosed with RSD. My experience with psychologists and psychiatrists has been a waste. My agitation is from too much adrenaline output-it's been measured. It's biological, and correlates with other symptoms during flares.
I doubt this is as rare as they say, as from the forums, we can see how unaware medical people are, and how much we are being under reported and not appropriately treated. My opinion is that that the doc should be sent some medical literature about the symptoms of RSD & how devastating to normal functioning RSD is.
For myself, I think I went because I was hoping to understand better. Once I got on these forums and read enough medical papers, I realized that many, many others are living exactly the same issues. It was no longer important to me to seek an "uneducated" (re: RSD) opinion in hopes of finding something that was "missed" or really new to try. I know what I need to know now & get more out of my local support group and the forums.
Corinne
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Hi Corinne and welcome to neurotalk. You will receive so much encouragement and support here. So many warm, kind friends here. I agree with you on getting someone educated and a skilled therapist.
One thing that really helped me, especially in the beginning, was journaling. It helps go thru the grieving process-all the losses. I enjoy music, reading, meditation, visualization, prayer, & keeping in touch with friends, thru phone and cards. Swimming is one of the best things, temp needs to be 86 degrees min. When my toes started curling up off the floor, my dr. had me exercising in the pool every day. and in 4 months the toes touched the ground again. yeah
I've just started a home based business. Something I can do with the computer and printer and the good days when I can get out and drive. I'm going to try the HBOT treatment next spring. My Dr. build two new clinics, each with HBOT in them. When I went full body about 9 years ago, I started seeing a psychiatrist, who also is a neurologist and pharmacologist. He has helped me a lot.
Ada, take care and let me know how you are doing. Your friend, loretta with soft hugs
