Quote:
Originally Posted by fattoush
I have tried Topamax twice. First, totally naively and under the guidance of a very famous Philly doctor who warned me of nothing and never listened to nothing. It was the nurse who practically saved me from suicide when I had reached 100 mgs and shared my thoughts. Of course, I had all the other side effects, severe weight loss, hair loss, words loss, jitteriness, insomnia.... but I was migraine free!!!!!!
I could never forget that. Nothing ever gave me that freedom after Topamax. So a few years later, with a much nicer neuro, a Pdoc on board, and a plan to titrate very slow, I am hoping I can do it. Any one got results at as little as 50 mgs and for a while? Your side effects please? I do get depressed at as soon as 50mgs but hope I can handle it better than migraine.
I've tried every other prophy, believe me please. I don't want to list them.
Am I taking a stupid step?
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Ok, talked to my sister -- who is on 200 mgs of Topamax a day -- and NOT suicidal, either. She is seeing a Migraine specialist -- a teaching professor. My sister thinks that something that you are eating may be contributing to the suicidal tendencies. Her doc told her that certain foods don't "mix" well with Topamax. You have probably already noticed that Cokes (sodas) don't taste "right" -- and sweets taste funny -- that is the reason for the weight loss. Ok -- we have noticed that cruciferous veggies -- like cabbage, broccoli, brussel sprouts, etc. -- make us "sick", now. Yeast really bothers my sister -- she has to avoid it completely (breads, pizza, etc.) -- I can tolerate some. You really may have to do a food journal -- and note HOW you feel after eating certain foods -- and go from there. The Topamax is certainly worth it to me. I haven't felt this good in a long, long time. I RAVE about this stuff every time I go to my regular neuro!