Hey all.

Ive finally gained a little bit of energy to get on the computer, yet im ready for bed.

Im still in the pediatric ward in the hospital. Today i had plasmapheresis which didnt go so well. halfway through my viens collapsed, and had to stop, which caused alot of pain, and throughout the whole time i was doing it, i my blood pressure was really high. My hands started to turn purple and became freezing.

They arent really sure why it happened, but are trying again monday, and if it doesnt work will have to put a catheter in.

They also started me on prednisone today, and so ive been tired from that.


Hope you all are handling this crazy disease okay.