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Old 11-28-2009, 07:50 PM
MiriamS MiriamS is offline
Junior Member
 
Join Date: Nov 2009
Posts: 28
15 yr Member
MiriamS MiriamS is offline
Junior Member
 
Join Date: Nov 2009
Posts: 28
15 yr Member
Default Thanks everyone

Just a vent:
I wish it was so easy for me to take all of these meds/vitamins that you are so kindly suggesting to me. I feel crazy that it's such a struggle for me to take medication, but I'm gathering all the info that you guys suggested and will try to start with one thing at a time.

aeb, echoes, antonina, Mrsd ... you gave so many wonderful suggestions, thank you. I will look into what you suggested.

pabb, my symptoms started about 11 months after my little one was born. I did have my thyroid tested, and was tested for lyme as well, but I'm not sure what you mean by thoroughly ... I would hope they would test it thoroughly! What is TSH? I'm not sure about specific testing for viruses ... need to check all my records and ask Dr. Thanks for posting your message.

glenn, I have been to a total of 3 neurologists, with Dr. Latov my third. My first neuro told me I'm stressed and I need to relax. The second neuro, though, was the one that did the comprehensive exam, EMG, blood work, etc. and diagnosed me with Small Fiber Neuropathy. I went to Latov because after learning he knows a whole lot about neuropathy, I was hoping that maybe he could help me out in a way that my second neuro wasn't able to, but Latov pretty much echoed what the second neuro did. So as far as getting the biopsy ... I know I'm experiencing symptoms of Small Fiber Neuropathy and I'm okay with knowing that without the biopsy for now. If I do feel at a later date that I would like to have this biopsy for whatever reason, I will definitely look into it. The only person who I would really love to get the biopsy for is my mother ... she is in complete denial and thinks I'm in all this pain because I am tired ... but if the results come back negative ... I will be in hot water

rae ... my head is spinning, but I'm hoping to gather all the info from everyone's suggestions and use it. Something about a person being depressed and not able to make appropriate decisions ... I think that's me at this point. Thanks for writing the message, even though you lost it in the end.
I'm sorry to hear about your situation and how you think your neuropathy started. Here for you so don't be afraid to vent away

Today is actually not a good day in terms of my pain .. I'm in incredible pain all day today and all I can do is wait until this intensity decreases. I will try a hot bath later ... at times, I feel a little better while I'm actually taking the bath, although as soon as I come out ... we're back to square one.

Thank you all so much for your help both practically, with your wonderful suggestions, and just by listening to all of my vents. I really appreciate it.

Miriam
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