Welcome Ina,

I think you're in the right place to get the information you need. Did your neuro do blood work? There are specific antibodies that may be (but are not always) present to help with MG diagnosis. What about an MRI?

If they know there is something wrong - what are they recommending as next steps to determine what it is? Please pursue a diagnosis - and if necessary, find another neuro.
Perhaps some one here could recommend someone in your area. Are you close to unc?

Sue