Quote:
Originally Posted by Snoopy
Not all of us with spinal lesions have a severe form, are primary progressive or rapidly deteriorating. This just sounds like more of the standard beliefs and impressions that, for some, are not true.
Too many years with this disease and a major skeptic  |
Re-reading Zamboni's statement:
Quote:
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"...Zamboni found blockages not only in the veins in the neck directly beneath the brain -- the jugular veins --but in a central drainage vein, the azygos vein, which flushes blood down from the brain along the spine. Blockages here, he found were associated with the most severe form of MS, primary progressive, in which patients rapidly deteriorate. For this form of MS, there currently is no effective treatment..."
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emphasis added. He's talking about blockages in the azygous vein, which drains from the spine, not talking about spinal lesions. Blockages in that vein happen to be associated with PPMS (not necessarily in ALL cases AFAIK), and PPMS in and of itself is not associated with spinal lesions.
Also, as we know, lesion load does not correlate with disability. However, emerging research has found that iron deposition does correlate with disability, and it is this deposition of iron that is believed to be associated with the drainage problems that CCSVI poses. Iron leaks into the brain, damages tissue, and it is that level of iron in the brain that is closely linked to how disabled a person with MS is.
I think it's important to read the studies itself, as I have noted errors in the news reporting and some of the articles commenting on the studies. It's amazing how they read one thing in a study and report something else. In one article, they mentioned Zamboni found 90% of people with MS had CCSVI. Nope. It was 100%. Every single person he has studied, even in the blinded studies, that had clinically definite MS also had CCSVI.
here's a
re-link to the list of actual studies.