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Old 11-28-2009, 11:15 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Hi, Ina. Welcome.

Have you been to a neuro-ophthalmologist for the double vision? Does it go away when you close one eye (that's one clue). Do your eyelids (ptosis), or any other part of your face, droop?

Like Sue, I was going to ask about an MRI. And the antibody tests. Do you mind me asking who did the SFEMG? Was it Dr. Howard? He is an MG expert and works at UNC - Chapel Hill.

It can take awhile to get diagnosed with whatever is going on. Do you have a good primary doctor to test for some other basic things to rule them out, like thyroid conditions, lyme disease, B12 deficiency, etc.?

Do you have any shortness of breath? If so, you can see a pulmonologist for an evaluation of that. While that sounds like a lot of doctors, sometimes you need to do that to figure it all out. Specialists deal with different "body parts" and don't know what another specialist knows.

Becky, another member here who comes on from time to time, found out she had a virus causing some of her symptoms. Look back on old posts for that info.

It may take a while longer but you obviously need to figure this out. Being a Mom of 4 and not feeling well is rough.

I hope you can get answers soon. If there is a chance you have MG, try to stay out of the heat and rest a lot. If you get sick with anything like the flu, see your doctor immediately.

Annie
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