Thread: an update
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Old 11-28-2009, 11:20 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Tyson, I'll say it again - you need a full cardiac workup.

I'm sorry things didn't go well but they are taking you seriously and believe you need help. So that's half the battle.

Can I say I'm proud of you for seeking out help without it sounding too parental?

Some people with MG also can have a clotting disorder called Antiphospholipid Syndrome (APS). Someone should evaluate you for whatever caused that circulatory reaction. It's not normal. Have they done a chemistry panel on you looking at kidney function?

I hope you will feel better soon. Pred can make you temporarily worse, so take it very easy.

I'm sorry you have to be in the hospital but it's the best place for you right now. You probably avoided an MG crisis by doing so. It takes so much longer to recover from that!

Take care,
Annie
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