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Old 11-29-2009, 12:33 PM
jccgf jccgf is offline
Senior Member (jccglutenfree)
 
Join Date: Aug 2006
Location: Wisconsin
Posts: 1,581
15 yr Member
jccgf jccgf is offline
Senior Member (jccglutenfree)
 
Join Date: Aug 2006
Location: Wisconsin
Posts: 1,581
15 yr Member
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Quote:
I am a patient at the University of Chicago Celiac Center with a Diagnosis of Non-Celiac Highly Gluten Intolerant.
I am pleased to hear that the University of Chicago Celiac Center is now entertaining a dx of Non-Celiac highly gluten intolerant. 8 years ago when my family was going through the testing...non-celiac gluten sensitivity was simply discounted... especially at the University of Chicago Celiac Center. I've heard that Dr. Guandalini has been doing some research in the area of gluten sensitivity. We were never a patient of his, but I did have a phone conversation with his staff, and have heard him speak in the past at a Celiac convention in Chicago.

We put my youngest on a gluten free diet with only a positive antigliadin IgG and have never looked back. My older daughter was 16 at the time, and opted to listen to the specialists who told her a gluten free diet was not necessary because she had a normal biopsy (although it showed lymphocytic gastritis, also disregarded, which is indeed associated with gluten sensitivity). She still believes it is not an issue for her...despite a lifetime of symptoms that scream gluten sensitivity.
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