Good to hear that you are feeling a bit better!

I would recommend that you indicate to your terrific neuro that you want to be kept 'in the loop' on his thoughts re: your condition and his evaluation of your symptoms. What is he thinking (good and / or bad) about your status at this juncture and what does he see as next steps.

Patients come in all different variations of 'want to know' - and most docs will only share the minimum - - figuring that if the patient really wants to know more, they'll ask.

Now I am older (so it is a little easier for me to be pushy) - - but you have a right to know anything and everything about what your doctor is thinking re: your condition, your symptoms, he's treatment plan, his prognosis (what and when he thinks the outcome of your treatment plan will be).

And you can ask specific questions (to eliminate the need of saying shouldn't I be tested for 'xyz'). Like maybe you want to know:

why is my blood pressure so out of normal range?

why is my pulse jumping so much when I stand up?

why did I have such a bad experience with the plasmaex - - and what makes you think it will be better on Monday?

what about my symptoms is due to the MG and is there anything else that you think may be going on?

what's with the lightheadedness and the dizzy sensation? Is that MG?

And anything else you can think of that you want to know

Remember, this is not about questioning the docs knowledge or capability. It is about learning and becoming an intelligent partner in your treatment and letting your doc know how involved you want to be in the decision making process.

Happy Hunting for the Answers! Please let us know how it goes!

Sue