Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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Well said, Sue. I was fairly preoccupied this week due to planning a party for a family member and didn't respond as well as you did. Little hard to do when you have MG. And exhausting.
That was pretty much what I was thinking. TALK to the doctors. That episode you had wasn't normal and there has to be a reason for it (the plasma reaction).
APS is only one of the many possibilities of what could be going on. I bought it up because it is fairly common in people with autoimmune diseases (meaning, not rare).
It's funny, I was a "high fall risk" when I had my crisis but they didn't do anything to make sure I wouldn't; like what they are doing for you. You are getting great care.
Whatever is going on, besides the MG, they NEED to figure it out soon. We can only throw things out there but they are the ones who need to do the work.
I hope they can figure it out. You just try to "enjoy" your time there. Thanks for the update.
Annie
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