do not have this syndrome but want to say, I noticed this thread...
and I LOVE IT! I am in pain due to something going on either MS or fibro or whatever else the dr wants to say... either way spasm pain... pain always...

I work full time on my feet managing a McDonald's... and my mom sometimes says I need to quit..well I would love to.. as I have five kids and busy busy life... too busy....ok...

but sometimes the less I move the more I hurt... so I am thinking if I ever quit I would be in trouble... I know I could my carcass use less hours... but we can not afford that...

anyhow.. my point.. I am in pain enough for tears too many times in life... but then I pull self together and stretch with some yoga...and move what I can... feel if I move less and less I would curl up in pain worse...

hugsssss, and I know too... everyone I understand when you just can not... I think point can be even if you can not do much moving.. exercise etc... to do a bit...take good care of yourselves.. hugss,sarah