Hello RN Mom!

You're going to see Dr Schwartzman, in Philly? That's great!
He dx'd me back in 89 or so, after 7 years of nobody knowing.
You sound completely taking the right approach, did you say you were looking for a warm pool? Most all Rehab hospitals have warm pools! Just call,
and find out!

I'm intrigued by what you say about it going down your other hand and ring finger.
I forget what your injury was? How did you acquire this? The reason I ask, is because of what you say about your other hand. I, personally haven't heard rsd to spread that way, you may have TOS (thoracic outlet syndrome), especially if you were in a MVAccident.

This is what I have, rsd/tos from my first accident, and Dr S had it pegged within minutes.

About your meds, it's often wiser to take something stronger, than taking too much of something that doesn't work as well. After meeting Dr. S, I was quickly switched to methadone, and have been with it ever since. I really hope that the Oxy works well for you!
Unfortunately there is no magic wand or cure for what we have.
Keep moving, and smiling.
Cry when you must and rest.
Eat what's good for you, stay away from too much sugar and especially artificial sweeteners.
And, don't feel weak, if you need a psychiatrist. Usually PM doctors that are psychs work well. You must keep your mental health well, with this.

This is a "Managed" disease, not a cured disease. I was taught to think of it as High blood pressure, or Diabetes. Not a broken bone.
It would be wonderful if you could get into remission, and that will/might happen if you do a good job at managing it.

Prayers,

pete