We are all different for me the cool pool helps with the burning. My RSD is full body. The Y also has a therapuetic pool that is great for getting the muscles to lossen up. I can't remember the temperature of the pool they can tell you at the front desk. The therapuetic pool is used for the arthritis classes.
I went to see Dr. S in Philly several times. His knowledge of RSD is so comforting. Even though I don't have any future planned appointments. He is a great source of information. When I have questions I call him and if he doesn't return the call one of his nurse will. Call his office for an opinion on your SCS being implanted.
I ask God for directions with my medical care. Prayer is a must in my routine for care.
Take care,
Sherrie
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Originally Posted by RNcrps2
Thanks to everyone for reading/replying. I went to my pm Dr. He was quite upset-he said yes it is spreading and that when it spreads it may just be the burn, or sensitivity that it doesn't have to be exactly as original area. He changed my narcotic to Oxycontin which I am so against but he said you are chronic and not using it recreationally the most important thing is getting it to stop spreading. He recommends SCS implant(trial went well) but suggested 2nd opinion for other options. Have an appt. with Dr. S beginning of March. My husband thinks i should do the SCS and not wait. Did I mention it is also burning in my other hand-only down hand and ring finger. I feel like i am under the gun-do i take action now or do i wait and risk spread? I have seen psych for relaxation techniques and they are helping. Looking for pool therapy or maybe just YMCA as someone mentioned although i dont think i could get into a cool pool. I am very thankful i have you guys for support. momof4
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