Perhaps you needed a larger dose? Don't give up! Some of the coma patients had lower doses of ketamine which gave them relief but did not hold and the coma worked well for them. There is lots of research going on. They are even researching Thlalidomine infusions!
Don't give up hope!
Quote:
Originally Posted by momzpeachy
Hi everyone,
I haven't posted in a while because I was really not well for a while thanks to this wonderful disease. I then started Ketamine and went for the 10 day outpatient program. My last day was a week ago yesterday. I felt amazing during those 2 weeks. I felt somewhat normal again. The inflammation went down, the redness was almost gone, and the pain level went from a 10 to about a 2 by the 3rd day of ketamine. I was so happy. The last day, I walked out feeling awesome..not even tipsy that day and my dad and I went out for lunch. I wasn't even tired the whole day.
Well, by Tuesday the pain was creeping back up. By yesterday I was in a complete flare all over. It was horrible. I was in so much pain I could barely move and all I wanted to do was cry. My Dr knew that by Thursday I wasn't to good and I'm scheduled for boosters next week. They called me yesterday and brought bad news. After 10 days of ketamine, the relief should last longer than it did for me. I shouldn't be back to where i was already so now they may cancel the boosters and ketamine all together after next week. AAAAAAAAAHHHHHHHHHHHHHH!
I am so upset now because that leaves me with nothing! It worked but not for long so now what's next? They don't have an answer other than I will have this forever. Wonderful! I don't know if I can take this pain forever. I'm only 37 and can barely move most days. They don't know how to treat this because everything they have tried has failed. I feel stuck and hopeless.
I just needed to vent. I don't know what's next for me now.
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