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Old 11-30-2009, 09:42 PM
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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Hi -

Where did you go? And what was the protocol? When you say "set," what do you mean by that? Thanks so much. (Don't mean to pry, but I am looking into this myself, and I'm very interested in what other people have tried)

Also, did your insurance company pay for all or part of it?

XOXOX Sandy


Quote:
Originally Posted by Praise God View Post
Hope you guys are all doing well and had a wonderful Thanksgiving!

Well, I thought I would give you guys an update on my ketamine infusions. I had the 3 day 4-hour escalating dose in September, then another set in October (at a little higher dose) and I am looking to go back in December (next week).

Reminder: I have full body RSD. I won't go into too much detail but try to give an overview.

Sept. Infusions - I thought it had very little effect right after the infusions. But as the week went on, I noticed less areas were in pain and I had some days of lower pain. Same thing in week 2. By week 3, the pain had returned mostly in my left side from head to toe (very strong) and by week 4 I was back where I started - full body.

I quickly went for a 2nd set of infusions.

Oct. - same thing - did not feel like it did much but as time went on I had pain in fewer places. It hardly felt it in my hips for about 3 weeks (which was very strange because that is where I feel it predominently). I had some really low pain days and it is coming back on the left side (slowly) but not as strong as before and intermittently coming back on the right side. I had 5 days of low pain last week (like a holiday)

So I had the 1st set of infusions, then 4 weeks later I had the 2nd set and 9 weeks later I hope to have the 3rd set (hopefully, it will be even longer before the next one and hopefully less pain).

I am not without pain but I have had some low pain days. It is a slow process (and the ketamine is no picnic) but I hope to see more improvements to come.

Some weeks after the 2nd set of infusions I had one night where I slept 8 hours and a couple of nights of 6.5 hours! I usually average 4-5 hours of sleep.

Some people have immediate pain relief after the infusions (which is really awesome to see - can you imagine, all of a sudden being pain free).

For others, like myself, it is a slow process. Our brains are trying to change from the pain pattern back to normal. Have you guys see the studies they have done one brain patterns and functional MRI's? Quite interesting! If the pain goes away, the brain can re-wire back to a normal state (yes, it is reversible). Very interesting. They have seen this in people with CRPS and phantom limb pain.

With God, all things are possible!
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