Hi Momzpeachy,
I hear ya! I completely understand your needing to vent and this is a great place to do it since we all have been through the ringer a few times and can understand your pain. This site has been the greatest blessing for me since no one in my family understands the problems we have. I am sorry for the problems you are going through and pray your doctor will have another idea of what to try. It does get frustrating trying everything and nothing seems to work. Hang in there. I was thrilled to hear you were feeling somewhat normal at one point and even went out to lunch!! Wow. That is great!!!

I have full body RSD and a host of other lovely neurological diseases which adds to the pleasure of my life and I understand you not being able to live like this the rest of your life since that is the same feelings I have had all last week. I have waited for Ketamine for over three years now and finally had all my clearances done (cause they change randomly each year) and was sent a notice to appear in court back in Sept 09 because the workers comp ins co wants to stop me from having the treatment done!!! I was devastated and felt just like you did...especially when a few hours later I recevied a phone call asking me when I wanted to setup a start date for the treatment. Here I waited so long and now to be told I can't do it?? I still have not had it done with no end in sight for waiting and I am about at the end of my rope too. I continue to pray and will keep you in my prayers too. Best of luck and watch some funny shows on tv just to laugh and get it off your mind for a moment.
Kathy d