Just be sure to get the results yourself and read them. My doctors have done this, told me I am doing great, then I see the results, and realize I am not doing so good. My ferritin level was near anemia, my Vit D level was 25, and many of the other levels are very low in the "normal range".

I too am a double DQ1, and considered not celiac, yet I am not so sure I believe them, and my PCP tells me he knows I am celiac...so who knows. I too have/had ataxia, and all of the symptoms you mentioned. I still deal with the brain fog, typing the word I want in connection to what I am thinking is sometimes a real issues for me.

Do the gene test, but also stay gluten free.