Hey Simon,

When is Thanksgiving again, in the US? I think that was a couple of weeks ago, right? That's a pretty good sign, I think, that it hasn't happened since then. What are your main areas of weakness, and how long have you had MG? I have this gut feeling that it was just a thing where maybe you were very tired, and the MG sorta started to affect a muscle group that it normally wouldn't, like what's happened with me a few times. Hopefully, if it does affect your speech, it'll only happen to a very mild degree, like with me and the ptosis/DV.

Hey Desert,

I know- the speech thing sure does suck! It's good that you stop yourself when you're getting stressed, so that things don't get worse. I agree that it must be tough to bottle up your emotions in order to prevent further weakness. I usually just continue talking as much as I can, even when I'm stressed, which is prolly why my speech ends up getting so slurred and completely nasal. Many times in the past, I've ended up writing things down for people if my speech starts to get very bad. At first, it was due to embarassment. I didn't want people to see that 'side.' My facial muscles get really weak too, where I can't close my mouth tightly. It's just a big mess when the weakness gets bad. But yeah, speaking slowly, with a bit more volume, helps to articulate- but sometimes, people think that I'm mad, but I'm just trying to articulate.

The trials and tribulations of this disease!


Nicky