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Senior Member
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Help!!!!!!
tHello all!
I am hoping someone can give me some advice.
I have been wakiing up with horrible charlie horses that go from the tips of my toes to my fingers. This pain is driving me CRAZY! ![EEK!](images/smilies/eek.gif)
You can actually see my muscles shake when I am having one of my episodes...it is so strange!
I HAVE had these b/4, but the 1st time I was so anemic I needed a blood transfusion. After that they were few and far between but still scared the crap out of me.
I have blood work done all of the time and it is always within normal range, so I have no idea what is causing this; what I DO know is that I am at the end of my rope!![EEK!](images/smilies/eek.gif)
I am also using a walker now b/c I can't put any weight on my left leg. It just hurts too much. I was recently dx'ed with piriformis syndrome but feel like something else is going on.
I went to Walmart the other day - big mistake - and was in so much pain that I was glued to the floor asking for help - no one helped me! Even WITH the walker the pain is horrible!
I am on 3 different pain meds right now, but feel that I NEED a round of IV IG as the pain is just exhausting.
That last round of plasmapherisis just wiped me out! My left leg and foot is still swollen - though not as bad as b/4.
Has ANYONE else experienced this? It is REALLY messing with me!
I am thinking about getting a Hoveround or some other machine like that, but don't want to "give in" to MG.
Erin![Thud](images/smilies/thud.gif)
P.S. There is some good to come out of this; my nail guy was so sweet and gave me a FREE face wax and nail polish b/c I told him I could no longer afford to have it done, and my girlfriend is coming out today to give me a new fresh "do" - some people have been so very kind!![Smile](images/smilies/smile.gif) ![Yahoo](images/smiliesc/yahoo.gif)
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Erin .
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