--and I agree with your idea to go to see the neurology department at Massachusetts General, which is an excellent one, well-versed in peripheral neuropathy.

Given your symptoms, especially the autonomic ones, this sounds like a post-infectious autoimmune small-fiber neuropathy, possibly due to molecular mimicry processes. Hockey's given you the link to the neuropathy forum here and you can definitely find info about that kind of situation there; I've written about it in anumber of posts and so have others. One can analogize it as a sort of small-fiber Guillain-Barre syndrome, and like that syndrome often the situation is worst for the months immediately after the cascade, and then there is some recovery, but the recovery is often partial and patchy. Nerve especially heal very slowly, and it may be years before you know how much recovery you may get.