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Old 12-06-2009, 11:21 AM
komokazi komokazi is offline
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Join Date: Dec 2008
Posts: 192
15 yr Member
komokazi komokazi is offline
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Join Date: Dec 2008
Posts: 192
15 yr Member
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Quote:
Originally Posted by shayna View Post

I'm praying for some type of test to see who is vulnerable to PML and who is relatively safe. Ty has been so good for me that I want quality of life more than quantity of life. I'll never have my "old" life back...the life I had prior to the severe exacerbations. But, I'm able to exercise, walk 1 1/2 miles without difficulty, drive a car again and see friends when I want to. That's better than being in a wheelchair and completely dependent on my husband!!!!!!!!!!!!!
Rumour has it that the JC Virus Antibody Assay will be available in Q1 2010 (Maybe even January). This assay will allow the identification of patients who have not been exposed to the JC Virus (No antibodies) which should mean a very low risk of PML. Per the companies, approximately 50% patient are JC Virus Antibody negative. Big effort right now is working with Key Opinion Leaders on treatment guidelines for patients who test positive for JC Virus Antibodies.
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"Thanks for this!" says:
Natalie8 (12-08-2009), Riverwild (12-06-2009), shayna (12-06-2009)