I have recently been diagnosed with MG and was started on Mestinon. My Neuro wanted to start with 30mg twice a day, next day 30 mg three times a day and today I started 60 mg three times a day.

First day- 30mg twice a day- I really couldn't tell if the Mestinon was working. But after 4 hours, I could feel the med wearing off, I felt worse.

second day- 30mg three times a day- An hour after taking the Mestinon, my "lump in my throat" feeling would disappear, to return after 4 hours when I could feel the med wearing off. I also noticed that about 2 hours after taking Mestinon, I felt more awake. Still my muscles felt tired...I but I could feel a little more energy. My eyes are still crossing and I still see double vision with out my prism. Darn! LOL

third day- 60 mg three times a day- An hour after taking Mestinon, my tongue feels heavier and a little wider...but, I feel fine! 2 hours after taking mestinon, I feel more alert, a little more energy....muscles still fatigued and my tongue still a little heavier...

So, is the heavier tongue a side effect of the Mestinon? I have only taken the first dose of the 60mg....I will take my second dose around 3:30pm.

This is all new to me, and while there is info on the internet about MG and Mestinon...I couldn't find enough info regarding Mestinon side effects.

Thank you all for reading this and any info that you can provide.