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Member
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Join Date: May 2009
Location: Eastern TN
Posts: 314
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Member
Join Date: May 2009
Location: Eastern TN
Posts: 314
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Yeah IVIG!
Hi Erin - Yes, I've been doing 2 days of IVIG every 2 weeks for about 3 months and it, along with the mestinon and cellcept has kept me working until 3 weeks ago when the dv got real bad and I started having trouble swallowing and breathing along with general overall weakness. The IVIG, if anything, seemed to sometimes make the weakness worse (go figure???)
I've been out about 3 weeks and I'm due for IVIG again next Thurs and Fri. The prednisone is helping with everything else except the DV. I'll see how I feel later in a couple of days to see if I need the IVIG again so soon. Just had it about 10 days ago.
Hope things get better for you soon - sounds like you've not been having any fun either!
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