Originally Posted by ali12

Hi Cassmom,

I'm SO sorry to hear that your daughter has been diagnosed with RSD! I really hope you can find something to help her and ease her pain and symptoms soon!

I'm 14 and also suffer from RSD. I developed it when I was 12 years old after an ankle sprain to my left leg and it has since spread to both arms. I've tried all sorts of medications and treatments but none have really helped. I was in a wheelchair for 13 months after a nerve block caused me to lose my coordination but thankfully, after an intense Physiotherapy (PT) course, I am able to walk short distances again.

I currently don't attend school due to friends not understanding and it being too much for me. I've tried going back many times and each time, I end up in a flare because of it. I am currently at College 3 half days a week doing a course in Health and Social Care for 14-16 year olds and attend a special school centre the other days for kids with disabilties and other problems. We are looking at the possibility of moving schools though as they don't really give me enough work to do and i'm afraid I wont get the grades I need to go onto the higher level college course if I continue going there.

As someone else said, RSD can often come and go and you can have periods of remission. My leg is permanently affected by the RSD and so is my left arm but my right arm seems to have flares off and on - though it always hurts to some degree, thankfully it isn't half as bad as my leg!

Does your daughter have PT? It's important to try and move as much as possible so that might be something to look into.

Please know that you are both in my thoughts and if you or your daughter ever want to talk, I am here for you (and my mum is too). I understand how hard it is dealing with RSD.

Take care!

Alison