I am from the midwest and went to Hopkins and they did nothing, not even blood. Waste of a flight and hotel room. I get the same care here in the midwest, and not at Mayo but another Academic hospital setting with an autonomic lab and good neuro dept. I am not saying that Hopkins or Mayo are not good, it is just unless you are going to be ongoing, it is really not that productive.

Hmm, we all must feel we need to travel, LOL.

I am fortunate to have a good research neuro and have been with him for 5 years. It took a long time for my disease to really show its stripes, and now, finally, I have serological markers of autoimmune disease, which was, my neuro's (and Glenn's) first hunch.

If you can get into a nearby academic neuro dept., one that will do a skin biopsy, that is probably pretty top tier.