WOW Vanna, that post is PRICELESS. I'm actually gonna print that one out!
I can't TELL you how many hours I've spent online researching these things and never ONCE have i been exposed to the inside info u are giving me!!
I've studied the medical perspective, then decided it was more beneficial for me to hear testimonies straight from the patients, so i've googled everywhere trying to 'hear' it from the pt's point of view.
You've got a wonderful way of actually 'placing me at the scene' and that is entirely too awesome;
you will make a GREAT ambassador!
I'm trying to actually picture being there (keep in mind = i'm probably the world's biggest weenie) cuz when i was there just to get the SNB (sympathetic nerve blocks) it hurt so much i couldn't believe it.....and so there i'll be, temporarily put under anesthesia.....then woke up to dictate to the surgeon precisely where the leads need to be, then put back asleep to get the procedure finished. THEN woke back up to communicate clearly to the reps which settings work....oh my lord.
I'll bet my bottom dollar that the reason so many people have less than successful outcomes is because they didn't/couldn't communicate these VITAL pieces of info !! I just don't know that i'll be 'with it' enuf to pull this off! This is certainly info that couldn't be stressed enuf to the pts.
One thing that p's me off here where i am, the dudes that do this procedure become so COMPLACENT in what they do and these things must seem like a 'dime a dozen' to them - they do NOT sit down and talk this straight with us! This 'simple' procedure to them is PARAMOUNT to my entire future !! (As you are well aware of) .... and it certainly is as u stated....living the way i am now is NOT an option much longer. I simply cannot live this way. This is my last hope. period.
Have you had a problem with 'headaches' after you had this done ?
i'm gettin one now just thinkin about it - that's what reminded me to ask that.
I've heard that headaches might be a problem.....
Good God, i've typed myself silly here......
And to think, you came to the forum to GET advice.....little did u know you'd be doling it out by the bucketful ....
I so very much appreciate you !