Thread: Anyone have Multifocal Motor Neuropathy ??
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Old 12-09-2009, 12:45 AM
eagleflight eagleflight is offline
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Join Date: Aug 2009
Location: Washington state
Posts: 4
15 yr Member
eagleflight eagleflight is offline
New Member
 
Join Date: Aug 2009
Location: Washington state
Posts: 4
15 yr Member
Default I have had Multifocal Motor Neuropathy for 20 years
Hi Nate,
I would be happy to talk with you. I have had MMN for 20 years and have learned a lot about what helps.

Quote:
Originally Posted by nate View Post
I have MMN. I first experienced symptoms almost 20 years ago. They were so mild I did not act upon them at first. When I did it took several attempts and multiple doctors to get a diagnosis. I start IVIG on Sept 14 2009. Anyone had luck with Rituximab? My symptoms seem to be progressing more quickly now with the jerks getting worse but I have not had cramps yet.

I live in Dallas and am looking for a support group or even one other person to talk to.

Nate
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