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Kitt · 12-09-2009, 10:49 AM

Hi, You should ask and have the doctor write down the type that he suspects you have. If indeed it is CMT, you do not want to "use it or lose it". If you overdo, you could exacerbate CMT. There is a fine line there. Your body will tell you. You cannot build up muscles that are affected and atrophied.

If in fact you do have CMT, and perhaps some of the rest of your family does, it would be the same type in the family. CMT is progressive no matter what you do. No one, not even a doctor, can tell you how you will end up. CMT symptoms vary greatly even within the same family.

You absolutely need to be seeing a neurologist who knows CMT very well if you are not. DNA blood testing is available thru http://www.athenadiagnostics.com There are 22 + types of it that they can now test for. It is expensive but they do have a program to help with the expense as well as your insurance might help out.

There is no magic bullet or pill or treatment as of now. Maybe someday as there is much research going on. Eat healthy - balanced diet, exercise within reason, swimming, stay away from stress, etc. You will deal with your symptoms as they come along. I wish you well.

Since you also have Lupus it might be harder to separate the effects of CMT and Lupus.