Raina--I was also told recently by my neurologist he suspected I had CMT. I did find out from Athena about their Patient Protection Program. For the
CMT1 test, they would require payment up front from me of slightly less than $600. If my insurance didn't pay for some reason, Athena would would credit me for payment in full and I would forfeit the $600. It depends on what state you live in; not all states qualify for some reason.

I am trying to learn as much as I can before I see the neurologist again in two months. Some have said doctors are not that knowledgable about CMT. I don't know if you are aware of the CMT Association website: Just type CMTA in your search window. You might find a doctor in your area from that website. That's what I have done and am going to get a second opinion from the CMT doc. Good luck.

Jon