Quote:
Originally Posted by TxSimon
Just before Thanksgiving I had some speech problems that were diagnosed as pertaining to my MG. I could not get words to come out of my mouth, but knew exactly what I wanted to say. I had to speak very very slowly and it was so frustrating to me. I am a radio dj and this was very terrifying to me, as it has never happened before. It is frightful for a man who likes to talk also! I just wanted to ask for feedback from others who might have similar problems with speech. I have another friend who has MG who tires quickly and his speech just becomes garbled, but he hasn't had a problem before with not getting words to come out. Please let me hear some feedback, it would be appreciated.
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Hi. I'm also in radio. Well at least for one more day. Am quitting because I just never know when my speech will be affected. I take Mestinon 60 mgs three timnes a day and a slow release version at bedtime. Most of the time my speech remains in tact. But the stress adds to my MG exhaustion. I also DJ for weddings and that will have to stop as well. My breathing is also very affected. So I'm just trying to deal with all of this. Was offically diagnosed in September. Was hosptialized then and againa couple of weeks ago for a few days. IVIG to help get rid of those bad antibodies. I understand your frustration adn terror. No one knows better than me how scary this is for someone who talks for a living.