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Old 12-10-2009, 01:05 PM
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cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
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Hi Spkar

I have been on the board for many years. I too have SNF.

I have a tentative diagnosis of SjS, based on ANA and labial biopsy...however, my ANA is speckled and nucleolar and very high.

Your labs seem to indicate Sarcoidosis. My neuro runs a neurosarc clinic, if you want more info, PM me.

I just posted on the PN forum, where I usually 'live'. I have the same frustration, it seems that if you go to an academic center, they feel you must meet every criteria.
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