Quote:
Originally Posted by keep smilin
Sandy...
A question.. how were they able to diagnosis the branchial plexsis association to headaches and connect it to RSD?? I am learning a bunch tonight as I have been suffering from the migraine wake up headaches for a few years.. then hearing loss...much longer than my obvious rt. leg RSD.. now further progressed RSD every where including my hip, shoulder and jaw...... Seems you and I and Vanna all share the fight ignition .. nothing stopping us attitude.. I am impressed how strong I have been...and I am not a crier.. until lately...as with you...but I can relate how we had to let go of our hero status and hit that wall of exaustion... I understand this will be a process..a long process.. although the change in my pace has been an immediate benefit.. it's my usefulness along with the love of my livelyhood for 25 yrs. that I miss..along with my friends..I have an appt. with Dr. S in 3/2010.. the appt. has been chaged 2 times in order for me to see him sooner as my Dr. feels my RSD is moving very quickly and it is the most aggressive he has ever treated...I do like my Dr... he is very knowledgeable and sympathetic.
I send you both gentle hugs.. and hopes for a good rest tonight... thxs for caring..It helps a bunch!! 
KS |
Hi there -
My RSD started in my shoulder - I was diagnosed with a torn rotator cuff tear after carrying a heavy workbag. Which likely did happen - I felt a rip in arm when I flung the bag in the back of my truck and they found it on the MRI. But it wasnt a really big one, and lots of people live forever with tears just like the one I had without any pain. Getson thinks the hauling and pulling and heaving of the work bag took a toll on the muscles and nerves in my chest cavity, which were injured but never treated. That's where the RSD started after really aggressive PT and excessive icing on the part of the orto's PT dept.
I don't know a lot yet about the brachial plexus. ASB Pete tells me its the equivalent of TOS. Getson told me to look it up online under Brachial Plexus injury and I'd find a lot of info. I've done some searches but haven't learned as much as I'd like. But I do know that if I use my arms for anything strenuous, expecially where there are vibrations - like raking leaves with a metal rake on a bumpy ground really hard - the next day is pure agony for my head. I can't move from the fetal position for hours, and it usually takes days before my head goes back to baseline (which is a steady state of pain at between 3 and 5).
Lidocaine infusions have chilled me out a bit. Can you aks for PCP to try them while you wait for Dr. S.
Good luck, Sandy