Sally - yes all other stuff has been ruled out, although I was never told exactly what ( i know for sure tumour and lupus) but i would assume my 1st neuro ruled out such things. She said there were only really rare things left to test for (she didn't).

One minute I'm fine, mowing lawns, shopping for ages, vacumming all on the same day, and feeling 'normal'.
The next week I'm limping, twitching and tingling and my arm is slow. Something is not right!!

Docs have never offered any relief from the sx. Just tell me to relax and get some light exercise.

Thank you for the info and support ladies.
I am getting a little better at living with it though. With or without a name for it.