Thread: I was tested for CCSVI and may join a trial
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Old 12-11-2009, 07:10 AM
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Riverwild Riverwild is offline
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Join Date: May 2007
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Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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All I can say is WOW Natalie.

It sounds like it's a good thing you got tested and that you know that you have this condition! I can't tell you all the thoughts that went through my head when I read this, how this condition may relate to MS and so many other problems people have!

Let us know when you find out who the East Coast doc is. I for one will be interested since there's virtually no chance I will be going to Buffalo or Stanford. I'm hoping someone from Boston or thereabouts will be picking up on this and it will give those of us over here a chance to get tested.

You're our pioneer now for this condition and the procedure that you choose to follow. We'll be watching and cheering you on in whatever you decide to do!

We won't make any "spaghetti head" jokes just yet!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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