One thing I would suggest is writing a story about RSD for your local paper also. Our paper has had several articles in it about people with RSD and what they have gone through.

I have often wondered if anyone knew how much if any money is going to research. There are so many RSD groups out there and the money is being split into groups by having so many. I often wonder why people start all of these groups instead of one big one where the donations can be kept up with. It's not just RSD, it's cancer and other things. I do know we have the RSDSA, which is one of the biggest ones.

Too, I would think writing to the Politicians might help get the RSD out there.

Sorry to hear what you have been through. I have 2 Grandson's that is into sports and everything else going and I often worry about them ending up with RSD. I hate to see all of the young people on here going through this.
I do hope you can get to where you can enjoy growing up and having fun with other teens.

Ada