Originally Posted by kayru11

i am so sorry. i feel for you. 20 years ago i began to have the exact symptoms. it began with burning and tingling in my feet, then increased in both legs and feet, eventually in arms and hands. NO doctor could diagnose me even though i had history of a tick bite. i went 5 long miserable years undiagnosed with lyme disease. by the time i was finally treated it was too late to stop the nerve damage and i have now lived with the neuorpathy 20 years.

has any doctor mentioned lyme? i was diagnosed with everything under the sun, all wrong. the lyme was able to invade so many systems in my body...CNS, bones, heart, i even have some nerve damage in my inner ear area so i deal with a lot of balance issues.

you sound exactly like me 20 years ago. i am so, so sorry you hurt like that because i can and do relate.

if someone has already mentioned lyme i am sorry. i think i read most of the answers but may have missed some.

kathy