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Member
Join Date: Aug 2008
Posts: 409
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Welcome to our forum Snowboarder,
There are many things that can be done to get out and take action, to affect change and bring attention to our cause. It's not easy for many of us to step up to the plate so to speak because of our individual medical situations. That's one reason I support the RSDSA.org organization, they do good work and bring attention to RSD on our behalf. I posted their link on my facebook page to help to spread the word that way.
I know that it can seem like no one is interested in helping to find a cure for our disease. There is still so much that is not understood and research can be slow and daunting in it's progress. RSD/CRPS may not be the sexiest disease to research, it doesn't attract the big dollars or accolades, but it has drawn the attention of some very dedicated doctors and researcher world wide. Just yesterday I received an email from Medifocus with a list of 18 CRPS/RSD abstracts published on PubMed recently. Many of the abstracts have been posted here on other threads, some are new for me. Here is the list below.
Quote:
Here is the result of our team's work in Reflex Sympathetic Dystrophy this month:
1: Can the outcome of spinal cord stimulation in chronic complex regional pain syndrome type I patients be predicted by catastrophizing thoughts?
Authors: Lame IE, Peters ML, Patijn J, Kessels AG, Geurts J, van Kleef M
Institution: Department of Pain Management, ResearchCentre, University Hospital Maastricht, The Netherlands. ingelame@telfort.n
Journal: Anesth Analg. 2009 Aug;109(2):592-9.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
2: Lumbar sympathetic blockade in children with complex regional pain syndromes: a double blind placebo-controlled crossover trial.
Authors: Meier PM, Zurakowski D, Berde CB, Sethna NF
Institution: Department of Anesthesiology, Perioperative and Pain Medicine, Children's Hospital Boston, Harvard Medical School, Boston, Massachusetts 02115, USA.
Journal: Anesthesiology. 2009 Aug;111(2):372-80.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
3: The natural history of complex regional pain syndrome.
Authors: Schwartzman RJ, Erwin KL, Alexander GM
Institution: Department of Neurology, Drexel University College of Medicine, Philadelphia, PA 19102, USA. robert.schwartzman@drexelmed.edu
Journal: Clin J Pain. 2009 May;25(4):273-80.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
4: Is reflex sympathetic dystrophy/complex regional pain syndrome type I a small-fiber neuropathy?
Authors: Oaklander AL, Fields HL
Institution: Department of Neurology, Massachusetts General Hospital, Harvard Medical School, Boston, MA 02114, USA. aoaklander@partners.org
Journal: Ann Neurol. 2009 Jun;65(6):629-38.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
5: No impaired hemoglobin oxygenation in forearm muscles of patients with chronic CRPS-1.
Authors: Brunnekreef JJ, Oosterhof J, Wolff AP, Crul BJ, Wilder-Smith OH, Oostendorp RA
Institution: Department of Physiotherapy, Research Center for Allied Health Sciences, Radboud University Nijmegen Medical Center, Nijmegen, The Netherlands. jbrunnekreef@hotmail.com
Journal: Clin J Pain. 2009 Jul-Aug;25(6):513-9.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
6: Intrathecal ziconotide for complex regional pain syndrome: seven case reports.
Authors: Kapural L, Lokey K, Leong MS, Fiekowsky S, Stanton-Hicks M, Sapienza-Crawford AJ, Webster LR
Institution: The Cleveland Clinic Foundation, Cleveland, Ohio 44195, USA. KAPURAL@ccf.org
Journal: Pain Pract. 2009 Jul-Aug;9(4):296-303. Epub 2009 May 29.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
7: Functional imaging of central nervous system involvement in complex regional pain syndrome.
Authors: Schwenkreis P, Maier C, Tegenthoff M
Institution: Department of Neurology, BG-Universitatsklinikum Bergmannsheil, Ruhr-University Bochum, Germany. Peter.Schwenkreis@ruhr-uni-bochum.de
Journal: AJNR Am J Neuroradiol. 2009 Aug;30(7):1279-84. Epub 2009 Apr 22.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
8: Sympathetic block with botulinum toxin to treat complex regional pain syndrome.
Authors: Carroll I, Clark JD, Mackey S
Institution: Department of Anesthesiology, Stanford University School of Medicine, Stanford, CA 94304-1573, USA. irc39@pain.stanford.edu
Journal: Ann Neurol. 2009 Mar;65(3):348-51.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
9: Practical management of complex regional pain syndrome.
Authors: Hsu ES
Institution: Pain Management Center, Department of Anesthesiology, David Geffen School of Medicine, University of California, Los Angeles, LA, USA. ehsu@mednet.ucla.edu
Journal: Am J Ther. 2009 Mar-Apr;16(2):147-54.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
10: Intrathecal baclofen for dystonia of complex regional pain syndrome.
Authors: van Rijn MA, Munts AG, Marinus J, Voormolen JH, de Boer KS, Teepe-Twiss IM, van Dasselaar NT, Delhaas EM, van Hilten JJ
Institution: Department of Neurology, Leiden University Medical Center, P.O. Box 9600, 2300 RC Leiden, The Netherlands.
Journal: Pain. 2009 May;143(1-2):41-7. Epub 2009 Feb 18.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
11: Current understandings on complex regional pain syndrome.
Authors: de Mos M, Sturkenboom MC, Huygen FJ
Institution: Erasmus University Medical Center, Pharmaco-epidemiology Unit, Departments of Medical Informatics and Epidemiology & Biostatistics, Rotterdam, The Netherlands. m.vrolijk-demos@erasmusmc.nl
Journal: Pain Pract. 2009 Mar-Apr;9(2):86-99. Epub 2008 Feb 9.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
12: Warm and cold complex regional pain syndromes: differences beyond skin temperature?
Authors: Eberle T, Doganci B, Kramer HH, Geber C, Fechir M, Magerl W, Birklein F
Institution: Department of Neurology, Johannes Gutenberg University, Langenbeckstrasse 1, 55101 Mainz, Germany. eberlet@uni-mainz.de
Journal: Neurology. 2009 Feb 10;72(6):505-12.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
13: The association between ACE inhibitors and the complex regional pain syndrome: Suggestions for a neuro-inflammatory pathogenesis of CRPS.
Authors: de Mos M, Huygen FJ, Stricker BH, Dieleman JP, Sturkenboom MC
Institution: Erasmus University Medical Center, Pharmaco-epidemiology Unit, Department of Medical Informatics and Epidemiology, Rotterdam, The Netherlands. m.vrolijk-demos@erasmusmc.nl
Journal: Pain. 2009 Apr;142(3):218-24. Epub 2009 Feb 4.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
14: Estrogens and the risk of complex regional pain syndrome (CRPS).
Authors: de Mos M, Huygen FJ, Stricker BH, Dieleman JP, Sturkenboom MC
Institution: Pharmaco-Epidemiology Unit, Department of Medical Informatics and Epidemiology & Biostatistics, Erasmus University Medical Center, Rotterdam, The Netherlands. m.vrolijk-demos@erasmusmc.nl
Journal: Pharmacoepidemiol Drug Saf. 2009 Jan;18(1):44-52.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
15: The efficacy of manual lymphatic drainage therapy in the management of limb edema secondary to reflex sympathetic dystrophy.
Authors: Duman I, Ozdemir A, Tan AK, Dincer K
Institution: Department of Physical Medicine and Rehabilitation, Gulhane Military Medical Academy, Etlik, 06018, Ankara, Turkey. iltekinduman@yahoo.com
Journal: Rheumatol Int. 2009 May;29(7):759-63. Epub 2008 Nov 22.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
16: The effect of sequel symptoms and signs of Complex Regional Pain Syndrome type 1 on upper extremity disability and quality of life.
Authors: Savas S, Baloglu HH, Ay G, Cerci SS
Institution: Department of Physical Medicine and Rehabilitation, Suleyman Demirel University Medical School, Isparta, Turkey. serpilsavas@yahoo.com
Journal: Rheumatol Int. 2009 Mar;29(5):545-50. Epub 2008 Oct 25.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
17: Does evidence support physiotherapy management of adult Complex Regional Pain Syndrome Type One? A systematic review.
Authors: Daly AE, Bialocerkowski AE
Institution: Department of Physiotherapy, Austin Hospital, Heidelberg 3084, Victoria, Australia. anne.daly@austin.org.au
Journal: Eur J Pain. 2009 Apr;13(4):339-53. Epub 2008 Jul 10.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
18: Biphosphonates for the therapy of complex regional pain syndrome I--systematic review.
Authors: Brunner F, Schmid A, Kissling R, Held U, Bachmann LM
Institution: Department of Physical Medicine and Rheumatology, Balgrist University Hospital, Forchstrasse 340, 8008 Zurich, Switzerland. florian.brunner@balgrist.ch
Journal: Eur J Pain. 2009 Jan;13(1):17-21. Epub 2008 Apr 28.
http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
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This is just a list of recent publications, there is much more research going on.
While we may not have the same attention and funding like other diseases such as cancer or MS I don't think we are going unnoticed. There is hope and it's up to each of us all to get involved in any way we can.
MsL
Last edited by Mslday; 12-12-2009 at 04:41 PM.
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