Originally Posted by SandyS

Hi Snowboarder13,

My daughter is 16 years old and has RSD, She has undergone Ketamine infusions with great results. I understand your frustrations and I read in one of your posts that you are 17 years old. Here is a way that you can get the word out. Take a moment to email Oprah, the Doctors on NBC, and other daytime shows. Send them your intro, explain what RSD is, tell them what you have told us. How this disease has robbed you of your young life, there are many young teenagers on this board and together you should write and let them know. They may listen to you, you are a child, I know you are 17 but you have more clout than adults when it comes to illness. There was someone on facebook, I believe she tried to get everyone to email Oprah on one day in July, with some success, I know there is an old post on neuro talks that asked everyone to email Oprah, maybe someone here can remember who it was that had the original post.

Remember Snowboard13, you are your own voice, this is your disease,
let them know...I have faith in you!

I am sure that we all can help, get it started. Good Luck.

Sandy