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Originally Posted by Xopher
I believe they're seeking 1,100 MSers and 600 non-MSers as a control group for the study, which can be applied for on-line. If selected, all testing procedures are paid for by BNAC, although there is no financial compensation for travel, lodging and related expenses. I did fill out the on-line application, and would gladly pay my way, but was dismayed to read that no Doppler or MRV reports will be given to participants or to their physicians. Yet this is precisely what individual participants will desire to know. For all but local or nearby volunteers, I'm afraid once it becomes clear to traveling participants that they'll get no returns on their expenditure other than perhaps a thank you and the knowledge they've helped move this study along, there will be many who will not follow through if accepted, which could potentially greatly delay the study. I personally would not be able to justify the expense of the trip if this is to be the case. If I've understood this "no results will be given to participants or their physicians" correctly, hopefully they will reconsider this. If anyone has any further information or insights, I'd be eager to know of it. Thanks in advance.
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I got the same info about this data collection in Buffalo and I think it's great that doctors are collecting at this point, but I tend to agree with everything you've said about the collection of results and how they're not being given to our own doctors.
I live way far east in Canada, and I did get the email with the stuff to fill out, but declined because of the distance/work scheduling.