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Magnate
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Join Date: May 2007
Posts: 2,049
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Magnate
Join Date: May 2007
Posts: 2,049
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I am more numb from the knees down, with a bone like pain in my tibia and foot area. Filipe, in my presentation, I had no pain below the knees! I didn't even realize when I hurt myself! I felt like a tight stocking was on. At first I thought I had a compartment syndrome. I was running on these feet and legs and ended up with a bad stress fracture which would not heal. Still no one thought neuropathy. It was not until my autonomic system failed that I got the neuropathy evaluation. Neuropathy is complex.
Megan, my QSARTS were abnormal....my thermoregulatory sweat test showed global anhidrosis. Can they do a tilt? After I flunked the autonomic battery, then they did a skin biopsy. I am cared for at a research center. You pretty much have to be at a research center here too, altho research centers are widely available. I did have to wait 3 months originally, and they wanted me to wait 6 months to get in!
Glenn, so if I read what you posted, +ANA=vasculitic in general? I am thinking it is vasculitic myself. Ugh.
Thanks for sharing.
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