Quote:
Originally Posted by SandyRI
Hi friends,
I feel so, so stupid and so ripped off and so sad. The physical therapists who hurt me so badly all worked directly for my surgeon - he is the Director of PT for his group of orthopedic surgeons. He is also reputed to be the best shoulder guy in RI. So I trusted him and didn't seek a 2nd opinion. I was in so much pain I thought he must be right. I didn't hear the term "RSD" until a few months subsequent to the 2nd surgery.
So 3 years later I'm DESPERATELY waiting for WC court to PLEASE approve ketamine infusions so I can hopefully become well enough to go back to work.
I'd just like to know if there is anyone else out there that has a similar background like mine? Where have you have all turned under these circumstances? How do you ever mentally get over this stuff? As if that's not enough, I've been beat up by WC ever since the RSD diagnosis was made.
I am trying Mindfulness. Trying. My appts. with a shrink were cut off by WC, but in the 10 appts that they let me have I did learn about that.
Sorry this is so long. Another one of my rants.... as always, thanks for listening.
XOXOX Sandy
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I'd just like to know if there is anyone else out there that has a similar background like mine? Where have you have all turned under these circumstances? How do you ever mentally get over this stuff?
Sandy, what a horrible ordeal. I have read of many people here who have had nightmares with WC. Mine was an injury from negligence, however , not involved with work. However we have similaraties.
The ortho surgeon who eveentually ended up treating me for six weeks. and who I went on an on about the burning pain thinking I must have bone cancer or something, never diagnoside rsd. Only to find out a year and an half later, like you- after the wrong type of physical therapy has caused my rsd to spread and worsen, I found out that this ortho was very famililar with rsd and had referred many patients to the doctor who did finally diagnose me. Can you belieive it? Why didnt he send me.
Because he wanted to get max benifit from treating me for the fracture and milk my insurance company. I also want to mention that this doctor was, yes was, a close family friend so we really trusted him.
When he found out later I was diagnoside by the doctor that did- he said oh yeah , thats where we send all our patients who dont stop complaing. to this day i can not belieive he let me suffer and that his is a huge reason mine went full body so quickly.
I have to tell you I dont think Ill ever get over that he could have had me in treatment in the 6 month window.
Having shared that may I say I am so glad you have found dr. getson. I have read only wonderful things about him. I do hope you willl be able to start the ketamine infusions. I have posted previously about this but my alloydina was so severe mentally i really did not knw how much more i could take. What years of ketamine infusion did for me was greatly reduce my alloydina .
I highly recommend infusions for this.
My insurance paid for it all. I did have to prove that there was no physican within network to preform the treatments. that was it. I never spoke directly with my insurance company. Carol in Dr. S's office did it all. and good thing she did, I was in no condition to handle anything like that. since wc seems to stall and take so long for most people on here, Is there any possibliity your insurance will help. ?
After meeting with me and talking about my history for only about 10 minutes, he figured out the source of my RSD - Brachial Plexus nerve injury.
Also conincientally, dr. s diagnosided the rsd in my brachial plexus on my first vist, I was not even aware of it I was so intensely focused on my leg, my orginal injusry sitie.
So 3 years later I'm DESPERATELY waiting for WC court to PLEASE approve ketamine infusions so I can hopefully become well enough to go back to work.
In hoping to go back to work.. well i did everthing i have done with that goal, the three years of infuslons, three 5 day sets i ICU and the coma. I have not been able to return, Yet i try eveything new if I can afford it.
Mentally it has been almost impossible for me to forgive some of those that played a role in what i went through.
My therapy had so many more important goals. Like how to mentally survive the pain, the loss of identity, being a burden on others after being so independent my whole life. I am still in therapy. i could nto have made it with out the therapy especially after almost dying in Germany.
I hope some of this information will help, especially trying directly with your insurance company.and I will have in my prayers that you are able to get the infusions Sandy, they really do help so much and maybe they will help you enough to go back to work. I hope so.
thank you for giving me the opportunity to share my story too. Let me know if you have any questions about the infusions, Id be happy to help. my very best to you, cz
Sandy, sorry I had a hard time getting quotes from your post in the right place. Hope my reply isnt too confusing!!