Thread: Suspected MG
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Old 12-14-2009, 01:00 AM
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Nicknerd Nicknerd is offline
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Join Date: May 2009
Location: Toronto, Canada
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Nicknerd Nicknerd is offline
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Join Date: May 2009
Location: Toronto, Canada
Posts: 547
10 yr Member
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Hey Polly, Welcome!

I agree with Suev that it's more of a profound sense of heaviness that I feel. Oftentimes, the heaviness is so bad that I can't move my tongue to touch my back teeth. My symptoms are very severe in the morning as well (Which is a bit unusual with MG). I also have shoulder weakness, chest weakness, finger weakness, tongue and palate weakness and arm weakness.

The symptoms in my hands are kinda odd, and I'm pretty sure that I have something else going on. I have a lot of stiffness as well. I also have finger drop after typing for a bit (the last three digits on each hand just drop downward). I also have constant twitching in two fingers on my left hand. My doc. doesn't think that these are caused by MG and as a matter of fact, I had an EMG done on my left arm and he found denervation (the nerve's not really meeting the muscle). This can be a feature of MG but is very unusual, apparently.

Anyway, the way that you describe the spasming and stiffness sorta reminds me of myotonia/spasticity a bit...Has the doc. ever mentioned this to you? When you say that you can't seperate your fingers, is this constant or after activity and then it resolves?

Anyway, I hope that you get some answers soon...The symptoms you're experiencing definately sound distressing...The fatiguability sounds like MG but the stiffness and such kinda sounds a bit like something else is going on..

I wish you luck and I hope that it all gets figured out soon!
Nicky
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